Contractor Senior Manager, Public Affairs EMEA

At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do.To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies wont go challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth so employees can thrive in all areas of their lives, in and outside of work.Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally andpersonally, come join our team.
Position Summary:

ultrafocused Work together to fearlessly uncover new possibilities

This position will represent the global corporate affairs functions in EMEA region to include Policy, Government and Public Affairs (PGPA) and Corporate Communications. The Senior Manager will support the specific strategic priority of building relationships with key stakeholders and the development of key messages and content in partnership with the SVP Region Head of EMEA, the SVP of Corporate Communications and the Executive Director for Patient Advocacy EMEA. Engage with key external thought partners, leaders, policy makers, trade association and patient advocacy leaders on behalf of Ultragenyx and support compliant exchange of complex scientific information related to Ultragenyx areas of research, product development and commercialization.

Work Model:

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

• Manage Ultragenyx relationships and activities with relevant external industry leaders, policy makers, patient advocate leaders, and local media as part of implementing the EMEA External Stakeholder Plan.
• Work closely with Head of EMEA at regional level and local GMs at country level to understand local dynamics, identify opportunities for representation and sharing our voice at key panels/meetings and ensure alignment to our global and regional strategies.
• Manage the trade association memberships, renewals and sponsorship opportunities on behalf of the Policy, Government and Public Affairs team, including coordination sponsorship efforts to include customized ads, speaker packets and logo placements.
• Manage Ultragenyx relationships and activities with relevant policy stakeholders including key members of the European Commission and European Parliament.
• Participate in key industry trade association meetings and US Chamber of Commerce Councils regarding rare disease and orphan drug policy positions (including diagnosis, development and access), and identify opportunities for leadership to be engaged in key discussions.
• Monitor key legislation in Europe, and work closely with the internal Global Policy Committee to ensure alignment with key messages.
• Represent Ultragenyx and serve as the primary press contact with rare disease communities and media in Europe, in coordination with global corporate communications; monitor press coverage in EMEA regarding rare disease innovation and access and distribute internally.
• Partner with global internal communications to elevate the patient voice and experience internally in support of Ultragenyx's patient-focused approach and culture.
• Provide alignment with global and regional strategies, identify challenges and opportunities, challenge local thinking to ensure we achieve excellence and give guidance and support as relevant.
• Ensure compliance with all internal and external guidelines.

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